Monday, 06 April 2020 08:44

ISN SharE-RR Group Plans Data Collection on Kidney Disease and COVID-19

During the COVID-19 pandemic, it is more important than ever to gather data to advocate for people with kidney disease. Recognizing this, the ISN’s SharE-RR (SHARing Expertise to support the set-up of Renal Registries) group, led by Fergus Caskey, has been working with its global network of registry experts to identify plans to establish COVID-19 surveillance systems and share experiences.

Responses to date have been summarized in a new section on COVID-19 on the ISN website with contact details for more detailed information.

The team is working alongside Thomas Hiemstra at the University of Cambridge, and Chair of the ISN-ACT group, to develop a data entry portal that will allow anonymized data to be collected on people with kidney disease and COVID-19 infection in countries without infrastructure.

This is a rapidly moving field; if you are aware of any activity not included here, or just want to get involved, please get in touch at

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