{"id":2535,"date":"2022-02-03T16:19:46","date_gmt":"2022-02-03T16:19:46","guid":{"rendered":"https:\/\/www.theisn.org\/wcn\/?page_id=2535"},"modified":"2022-02-27T14:12:39","modified_gmt":"2022-02-27T14:12:39","slug":"isn-community-film-event-2022","status":"publish","type":"page","link":"https:\/\/www.theisn.org\/wcn22\/isn-community-film-event-2022\/","title":{"rendered":"ISN Community Film Event 2022"},"content":{"rendered":"

[vc_row][vc_column][vc_single_image image=”2631″ img_size=”full”][vc_column_text]<\/p>\n

Your Story Makes a Difference<\/strong><\/h3>\n

The ISN Community Film Event is a unique initiative to raise awareness and improve understanding of the reality of living with kidney disease. <\/span><\/p>\n

This year\u2019s edition received <\/span>more than 20 films from 13 countries worldwide, proving, once again, the importance of this forum to share experiences and personal stories with a global audience.
\n<\/span>The ISN congratulates all the filmmakers for their high-quality submissions and thanks them for sharing their stories.\u00a0<\/span>\u00a0<\/span><\/p>\n

Selected by the ISN and WCN communities, the 2022 winner of the <\/strong>\u201cISN Community Best Film\u201d is<\/strong>:<\/span><\/p>\n

For Some the Wait Never Ends<\/strong>
\nSubmitted by: J. Meyyappan (Senior Resident, Nephrology, Lucknow, India) N. Prasad, V. Vamsidhar, S. Sabarinath \u00a0(Sanjay Gandhi Postgraduate Institute of Medical Sciences, Nephrology, Lucknow, India)[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column]\n\n

The finalists were:<\/h4>\n\t
\n\n\t\t\n\t\t\n\t\t\t\t\t
\n\t\t\t
\n
\n
\n \n\t\t \"Kidney\n\t\t<\/a>\n <\/div>\n
\n \n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t

Kidney Transplantation: New Life New Hope<\/h4> \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tBangladesh<\/span>\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n <\/div>\n <\/div>\n <\/article>\n\t\t\n\t\t
\n
\n
\n \n\t\t \"\"\n\t\t<\/a>\n <\/div>\n
\n \n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t

Pregnancy in Dialysis Story<\/h4> \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tEcuador<\/span>\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n <\/div>\n <\/div>\n <\/article>\n\t\t\n\t\t
\n
\n
\n \n\t\t \"Anthonys\n\t\t<\/a>\n <\/div>\n
\n \n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t

Anthony’s story nocturnal dialysis<\/h4> \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tAustralia<\/span>\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n <\/div>\n <\/div>\n <\/article>\n\t\t\n\t\t
\n
\n
\n \n\t\t \"\"\n\t\t<\/a>\n <\/div>\n
\n \n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t

Together we can change lives<\/h4> \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tHonduras<\/span>\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n <\/div>\n <\/div>\n <\/article>\n\t\t\n\t\t
\n
\n
\n \n\t\t \"Alport\n\t\t<\/a>\n <\/div>\n
\n \n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t

Alport Story: From Personal Isolation to International Collaboration for Kidney Care<\/h4> \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tUnited Kingdom<\/span>\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n <\/div>\n <\/div>\n <\/article>\n\t\t\n\t\t
\n
\n
\n \n\t\t \"Ilan\n\t\t<\/a>\n <\/div>\n
\n \n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t

Ilan Lavi Donates a Kidney \u2013 And Gets a Happiness Transplant<\/h4> \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tIsrael<\/span>\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n <\/div>\n <\/div>\n <\/article>\n\t\t\n\t\t
\n
\n
\n \n\t\t \"For\n\t\t<\/a>\n <\/div>\n
\n \n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t

For Some the Wait Never Ends<\/h4> \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tIndia<\/span>\n\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n <\/div>\n <\/div>\n <\/article>\n\t\t\n\t\t\t\t\t<\/div>\n\t\t\n\t\t\n\t<\/div>\n\n\t\n\t<\/div>[\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]<\/p>\n
\n
\n
\n
\n

For Some the Wait Never Ends
\n<\/strong><\/h3>\n<\/div>\n
\n

[vc_video link=”https:\/\/www.youtube.com\/watch?v=ZfGFKO8An6w<\/a>“]<\/p>\n

In Uttar Pradesh, India, awareness about cadaveric transplantation and public approach towards organ donation is poor, in spite of unfortunately high incidents of death due to road traffic accidents.\u00a0This film tells the story of Mr. Saad Ahmad Khan, a 26 year old, long term dialysis patient who has survived a cardiac arrest, battles visual impairment and familial chronic kidney disease ( leading to his close family members being rejected as potential donors). He pushes limits to excel in life while he awaits cadaveric transplantation. The excitement and anxiety the family faces every time the phone bell rings is way beyond imagination. His earnest question to us, “How long should I wait?”, prompted the filmmakers to make this film. They hope to increase the awareness about organ donation by showing the struggles of a patient waiting for an organ.
\nThis film was made in December 2021.<\/p>\n

Submitted by:
\n<\/strong>J. Meyyappan (Senior Resident, Nephrology, Lucknow, India)
\nN. Prasad, V. Vamsidhar, S. Sabarinath \u00a0(Sanjay Gandhi Postgraduate Institute of Medical Sciences, Nephrology, Lucknow, India)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

[\/vc_column_text][vc_column_text]<\/p>\n

\n
\n
\n
\n

Ilan Lavi Donates a Kidney – And Gets a Happiness Transplant<\/strong><\/h3>\n<\/div>\n
\n

[vc_video link=”https:\/\/www.youtube.com\/watch?v=DdA_-TFNq0k<\/a>“]<\/p>\n

A major feature of clinical nephrology practice in Israel has been the increasing availability of altruistic kidney transplants over the past number of years. This effort has been largely the result of one organization, Matnat Chaim and the effort of one man, Rabbi Yeshayahu Heber. Rabbi Heber started the organization ~11 years ago after successfully obtaining a kidney transplant for himself. Rabbi Heber passed away suddenly last year of coronavirus infection and the organization has continued stronger than ever under the direction of his wife. This short film is the story of one man who benefited. I wish to publicize this with the hope that other organizations might emulate these activities. This film including subtitles was just completed specifically for the WCN.<\/p>\n

Submitted by:
\n<\/strong>W. Wasser (Leumit Health Care, Department of Nephrology, Jerusalem, Israel)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

[\/vc_column_text][vc_column_text]<\/p>\n

\n
\n
\n
\n

Together We Can Change Lives<\/strong><\/h3>\n<\/div>\n
\n

[vc_video link=”https:\/\/www.youtube.com\/watch?v=Olxg5mn_TtI<\/a>“]<\/p>\n

A short film about the patients in Honduras who live day to day with Kidney Deficiency<\/p>\n

Submitted by:
\n<\/strong>M. Canales (Fundacion Luz y Vida, NGO, Tegucigalpa, Honduras)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

[\/vc_column_text][vc_column_text]<\/p>\n

\n
\n
\n
\n

Anthony’s Story. Nocturnal Dialysis: This Game-Changing-Service Puts Patients at The Centre of Their Care, Supporting Them to Access Treatment When and How it Suits Them<\/strong><\/h3>\n<\/div>\n
\n

[vc_video link=”https:\/\/www.youtube.com\/watch?v=s7WWZyY3KQc<\/a>“]<\/p>\n

Nocturnal Hemodialysis is a home-based dialysis model of care that supports an individual\u2019s self-management, quality of life and health outcomes. The Darling Downs Kidney Service, a regional service in Queensland, Australia, provides training and assistance for patients who choose, and are suitable for, this model of care. Anthony is a young indigenous man with kidney failure. To support him and other patients that do not have suitable accommodation for home-based hemodialysis, the service has made available their newly built home-training dialysis unit for the use of independent patients\u2019 after-hours. This novel approach is allowing more patients access to nocturnal dialysis, with all its inherent benefits.
\nThe Advancing Kidney Care 2026 (AKC2026) team first heard of Anthony, his difficult dialysis journey, and about how his service was supporting him towards his ultimate goal of kidney transplantation in 2020. Anthony’s outstanding renal team made this model of care (and film) possible by being innovative, specialized, and dedicated, by supporting patients to access care that responds to their personal situation and that is their choice. By sharing this film, we and the Darling Downs Kidney Service hope to shine a light on possibilities for care, whilst acknowledging Anthony for his amazing resilience and drive. At time of submission, Anthony had been made active on the Queensland Kidney Transplant waitlist.<\/p>\n

Submitted by:<\/strong>
\nJ. Skewes, S. Gleeson, S. Morris, S. Govindarajulu, (Queensland Health, Darling Downs Kidney Service- Toowoomba Hospital- Darling Downs Hospital and Health Service, Toowoomba, Australia)
\nB. Judd (Queensland Health, CEQ. Engage- Clinical Excellence Queensland, Brisbane, Australia)
\nC. Mears, A. Salisbury (Queensland Health, Advancing Kidney Care 2026- Clinical Excellence Queensland, Brisbane, Australia)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

[\/vc_column_text][vc_column_text]<\/p>\n

\n
\n
\n
\n

Pregnancy in Dialysis Story<\/strong><\/h3>\n<\/div>\n
\n

[vc_video link=”https:\/\/www.youtube.com\/watch?v=fnzDYwN6sEw<\/a>“]<\/p>\n

The objective of the video was to show human motivations that stimulate patients to keep fighting and living despite all the problems and imperfections of standard hemodialysis. By this way we want to educate renal patients by showing that there are several reasons for living, enjoy life and that it is possible to live well with chronic kidney disease as well as to give birth children even in rural or indigenous zones where poorness and hunger are present daily.<\/p>\n

Submitted by: <\/strong>
\nJ. Santacruz (Clinica de los Ri\u00f1ones Menydial, Nephrology- dialysis, Quito, Ecuador)\u00a7
\nC. Santacruz (Clinica de los Ri\u00f1ones Menydial, Nephrology- dialysis, Quito, Ecuador,Cl\u00ednica de los Ri\u00f1ones Menydial, Nephrology, Quito, Ecuador)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

[\/vc_column_text][vc_column_text]<\/p>\n

\n
\n
\n
\n

Kidney Transplantation: New Life New Hope<\/strong><\/h3>\n<\/div>\n
\n

[vc_video link=”https:\/\/www.youtube.com\/watch?v=cbkQxet9CGE<\/a>“]<\/p>\n

A successful kidney transplant can help a patient live longer with improved quality of life. It is like being blessed with gift of life twice. A new life and new hope where patient can get his own normal life back all over again. This story is about a man who was diagnosed as a case of FSGS with hypertension since 2006. He was reasonably fine till 2015 after which he started haemodialysis. On 2017 he received renal transplantation from his sister. He returned to his normal daily life and his sister is doing fine as well. He became father of his second child after renal transplantation.
\nThis film was made in November 2020.The reason behind making this film was to raise the awareness regarding renal transplantation. As this is the only treatment modality in end stage kidney disease where patients recover all functions of kidney with an improved quality of life. More improved life with more control over daily activities. It also eliminates the need for dialysis.<\/p>\n

Submitted by:<\/strong>
\nF. Nobi, T.S. Kashem, N.A.S. Begum, S.U.Z. Arefin, H.U. Rashid, S. Nomany (Kidney Foundation Hospital and Research Institute, Nephrology and Transplantation, Dhaka, Bangladesh).<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

[\/vc_column_text][vc_column_text]<\/p>\n

\n
\n
\n
\n

Alport Story: From Personal Isolation to International Collaboration for Kidney Care<\/strong><\/h3>\n<\/div>\n
\n

[vc_video link=”https:\/\/www.youtube.com\/watch?v=WtUn4KeBxxo<\/a>“]<\/p>\n

Alport Syndrome (AS) is an inherited condition that can cause kidney failure, deafness and eye abnormalities. Around 1 in 10,000 people are affected; potentially 750,000 people world-wide. AS particularly affects young people at an age when they are most vulnerable; typically starting with hearing loss in childhood, followed by declining kidney function in teenage years. Many patients will need a kidney transplant or dialysis as young adults.\u00a0To improve kidney care and develop treatments for Alport Syndrome, Alport UK\u2019s strategy is to engage the best experts around the world and bring patients (particularly young patients), clinicians, laboratory scientists and pharmaceutical companies together, in immersive workshops, to collaboratively develop new ideas to improve kidney care and treatments. This video, filmed between 2020 and 2022, was written and produced by young people living with Alport Syndrome, celebrates the highlights from the unique collaboration and international workshops, starting with the important focus to connect patients and reduce the feeling of isolation living with a rare kidney disease. Alport UK believes that all young Alport patients should have the opportunity to explore and understand the science behind their condition and be empowered by the expertise available. Encouraging them to take ownership of their condition builds vital confidence, resilience, and alleviates transition issues that arise during the move from pediatric to adult services. As a community they can mobilize public awareness and collectively drive research and innovation. Pioneering \u2018pilot\u2019 workshops in collaboration with the University of Manchester (funded by the Wellcome Trust) demonstrated the power of connecting young Alport patients with researchers, to help the patients understand various aspects of kidney care, dialysis and transplantation. These pilot workshops were then scaled and applied to the international workshops to engage a wider group of patients in kidney care.
\nThe\u00a0filmmaker patient, Sam Clarke, worked with Alport UK to set up the Don\u2019t Wait Fund to encourage young people with AS to take up a new sport or hobby that gets them outside and to help them explore new activities to help them live their lives to the full and reduce the feeling of being defined by their kidney condition. The community and friendships grow stronger from the fun and shared learning together. Patients take responsibility for their condition and learn how to look after their precious kidneys. The young people are keen to connect with a wider group of countries and collaborate to help the 850 million people living with CKD have a brighter future.<\/p>\n

Submitted by:
\n<\/strong>S. Gear (Alport UK, Patient- Patient Advocacy Group, Oxford, United Kingdom)
\nR. Lenno (Manchester University, Wellcome Centre for Cell-Matrix Research, Manchester, United Kingdom)
\nS. Clarke (Alport UK, Patient- Filmmaker and Action Sports Enthusiast, Reading, United Kingdom)
\nP. Walker (Alport UK, Patient, London, United Kingdom)
\nJ. Zhang (China Alport Patient Organisation, Patient, Shanghai, China)
\nV. Fronter\u00e8 (Associazione Sindrome di Alport- A.S.A.L Onlus, Patient, Siena, Italy)
\nA. Zealey Smith (Alport UK, Patient, Southampton, United Kingdom)
\nN.R.H. Hassan (Alport UK, Patient, Manchester, United Kingdom)
\nA. Jardin (Alport Syndrome Foundation, Patient, New York, United States)
\nY. Cai (China Alport Patient Organisation, Patient, Beijing, China)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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[vc_row][vc_column][vc_single_image image=”2631″ img_size=”full”][vc_column_text] Your Story Makes a Difference The ISN Community Film Event is a unique initiative to raise awareness and improve understanding of the reality of living with kidney disease. This year\u2019s edition received more than 20 films from 13 countries worldwide, proving, once again, the importance of this forum to share experiences and […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2535","page","type-page","status-publish","hentry"],"yoast_head":"\nISN Community Film Event 2022 - World Congress of Nephrology<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.theisn.org\/wcn\/isn-community-film-event-2022\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ISN Community Film Event 2022 - World Congress of Nephrology\" \/>\n<meta property=\"og:description\" content=\"[vc_row][vc_column][vc_single_image image=”2631″ img_size=”full”][vc_column_text] Your Story Makes a Difference The ISN Community Film Event is a unique initiative to raise awareness and improve understanding of the reality of living with kidney disease. This year\u2019s edition received more than 20 films from 13 countries worldwide, proving, once again, the importance of this forum to share experiences and […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.theisn.org\/wcn\/isn-community-film-event-2022\/\" \/>\n<meta property=\"og:site_name\" content=\"World Congress of Nephrology\" \/>\n<meta property=\"article:modified_time\" content=\"2022-02-27T14:12:39+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/www.theisn.org\/wcn22\/wp-content\/uploads\/sites\/4\/2022\/02\/1.jpeg\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.theisn.org\/wcn22\/#website\",\"url\":\"https:\/\/www.theisn.org\/wcn22\/\",\"name\":\"World Congress of Nephrology\",\"description\":\"Just another International Society of Nephrology Sites site\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":\"https:\/\/www.theisn.org\/wcn22\/?s={search_term_string}\",\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.theisn.org\/wcn\/isn-community-film-event-2022\/#webpage\",\"url\":\"https:\/\/www.theisn.org\/wcn\/isn-community-film-event-2022\/\",\"name\":\"ISN Community Film Event 2022 - World Congress of Nephrology\",\"isPartOf\":{\"@id\":\"https:\/\/www.theisn.org\/wcn22\/#website\"},\"datePublished\":\"2022-02-03T16:19:46+00:00\",\"dateModified\":\"2022-02-27T14:12:39+00:00\",\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.theisn.org\/wcn\/isn-community-film-event-2022\/\"]}]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","_links":{"self":[{"href":"https:\/\/www.theisn.org\/wcn22\/wp-json\/wp\/v2\/pages\/2535"}],"collection":[{"href":"https:\/\/www.theisn.org\/wcn22\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.theisn.org\/wcn22\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.theisn.org\/wcn22\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.theisn.org\/wcn22\/wp-json\/wp\/v2\/comments?post=2535"}],"version-history":[{"count":6,"href":"https:\/\/www.theisn.org\/wcn22\/wp-json\/wp\/v2\/pages\/2535\/revisions"}],"predecessor-version":[{"id":2733,"href":"https:\/\/www.theisn.org\/wcn22\/wp-json\/wp\/v2\/pages\/2535\/revisions\/2733"}],"wp:attachment":[{"href":"https:\/\/www.theisn.org\/wcn22\/wp-json\/wp\/v2\/media?parent=2535"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}