Advocacy

Mission

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As highlighted in ISN's mission, ISN strives to BRIDGE THE GAPS of available care through advocacy and collaborations with our global partners.

Advocacy is thus one of the strategic priorities of the International Society of Nephrology.

ISN is committed to Advocacy in order to facilitate the implementation of sustainable, equitable, ethical care for people with kidney disease in all regions and countries of the world.

ISN’s Advocacy objectives are threefold:

Ensure that kidney health is represented by a truly international voice on health-related global, regional and national policy developments
Provide input to health policy discussions relevant to improving kidney health e.g. surveillance and prevention, organ donation, transplantation and trafficking, renal replacement therapy access and others
Integrate kidney disease into the ongoing global debate and drive towards Universal Health Coverage (UHC) by leveraging kidney disease as a model for monitoring progress and achieving UHC.

Strategy

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RESEARCH: ISN aims to produce key evidence and analysis to support its advocacy positions and calls for action.
POLICY DEVELOPMENT: Based on the research results, ISN aims to make concrete policy proposals offering potential solutions and examples of best practice, in order to actively contribute to relevant policy action and debates.
OUTREACH: ISN engages in targeted communication and public affairs activities in order to engage in the policy development process and generate awareness about kidney health.
MOBILISATION: ISN strives to build internal capacity and support among the healthcare community with a view to creating a network of kidney health supporters that are able to echo the need for improved kidney care to key decision-makers and stakeholders at global, regional and national level.
ALLIANCE BUILDING: ISN aims to build alliances with external stakeholders, including organisations from other disease areas, in order to strengthen mutual objectives and advocacy efforts vis-a-vis key decision-makers and relevant stakeholders.

Projects & Activities

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EVIDENCE AND RESEARCH

ISN is building the case and producing the evidence to support policy asks and recommendations in the area of kidney disease:

We have produced a Global Kidney Health Atlas with the aim to review the management of kidney disease globally and demonstrate the gaps in the capacity and competence of individual countries to deliver high quality kidney health care. Initial results of the Atlas were presented in July 2016 at the Global Kidney Health Summit in Vancouver. The final results of the Atlas were presented in April 2017 in occasion of ISN’s World Congress of Nephrology.
Check out the main results of the AKI Global Snapshot, a far reaching cohort study providing brand new evidence on the burden of Acute Kidney Injury globally.
SHARing Expertise to support the set-up of Renal Registries SHARing Expertise to support the set-up of Renal Registries (SharE-RR) The SharE-RR team will develop resources that kidney health advocates can use to assist the establishment or development of a renal registry in their countries.

RAISING AWARENESS

As part of our Advocacy activities, we are raising awareness about the pressing need to tackle kidney disease through far-reaching global campaigns aimed at increasing understanding about the burden of kidney disease with governments, international institutions, health professionals, patients and the general public. Here are our global awareness raising campaigns:

Campaign Priorities: 2018 UN High-Level Meeting on NCDs
World Kidney Day
The Lancet Kidney Campaign

Help us showcase our campaigns with your national and regional decision-makers!

ISN INITIATIVES

ISN is committed to curb deaths from kidney disease globally and to this end, we have developed two far-reaching Initiatives to tackle Chronic Kidney Disease (CKD) and Acute Kidney Injury (AKI).

ClosingTheGaps has developed a new A Roadmap for Closing Gaps in Care, Research and Policy with strong and clear policy recommendations to decision makers on how to improve kidney care and management globally.

0by25 aims to curb preventable deaths from AKI by 2025 by implementing globally applicable strategies that permit timely diagnosis and treatment of AKI for patients with potentially reversible diseases.

Stay tuned for more information!

Policies & Positions

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ISN is getting involved in an increasing number of policy issues and activities including Universal Health Coverage (UHC), Non Communicable Diseases and Sustainable Development Goals (SDGs), Ethical and Equitable Dialysis and Organ Donation & Transplantation.

UNIVERSAL HEALTH COVERAGE

One of the overarching objectives of ISN's advocacy strategy is to integrate kidney disease into the ongoing global debate and drive towards Universal Health Coverage (UHC). In this context, ISN seeks to propose kidney disease as a model for monitoring progress, achieving Universal Health Coverage and improving global health. To this end, ISN is actively engaging in the current WHO and UN discussions around the subject of UHC and the broader efforts to meet the UN’s Sustainable Development Goals (SDGs). ↓ show more

In December 2015, ISN signed up to the Global Coalition for Universal Health Coverage calling for more progress to deliver UHC, including in kidney care. The coalition includes the WHO, World Bank Group, Rockefeller Foundation and hundreds of leading NGOs, healthcare organisations and academic institutions.

In December 2015, ISN responded to a UN consultation on the tracer indicators to be used in tracking UHC, one of the key health-related targets of the SDGs. In the consultation, ISN underlined the following key recommendations:

ISN supports the use of tracer indicators as an appropriate and effective way of monitoring progress towards the Universal Health Coverage (UHC) target.
In order to provide a good indication of the ‘health’ of the healthcare system, ISN also recommends that the defined package of tracer interventions should cover the full spectrum of health services that should be made available to the population. This package should include interventions targeted at disease prevention, diagnosis, treatment and rehabilitation.
Kidney disease, a non-communicable disease (NCD) with a growing global burden, particularly in low and middle-income countries (LMICs), is a good example of how such a package of interventions might be developed. While the greatest health benefit will come from delivery of the whole package, limited resources may require prioritization of interventions and a phased approach to implementation in order to achieve scale-up over time.

ISN contribution to the UN consultation on the UHC tracer indicators is available here.

ISN will continue to actively seek to demonstrate the impact and relevance of kidney disease in achieving the UHC.

Stay tuned for more information!

SUSTAINABLE DEVELOPMENT GOALS

ISN strongly welcomes the inclusion of health and non-communicable diseases in the UN Agenda 2030 for Sustainable Development and its 17 Sustainable Development and Sustainable Development Goals. At the same time, we also call for heightened awareness of the clinical, economic and social burdens of kidney disease, which are at present frequently underestimated. ↓ show more

ISN approves, in particular, the holistic approach of the Agenda 2030 and the Sustainable Development Goals (SDGs) which promises to have a positive impact on kidney disease globally. We support a system-wide approach to tackle the problem of non-communicable disease such as kidney disease. The reason being that many structural factors including poverty, education, nutrition, gender inequality, substance abuse, lack of access to primary care and overall health all directly increase the risk of kidney disease.

For more information about ISN's position on the role and contribution of SDGs and Agenda 2030 in the fight against kidney disease, please view ISN's statement at the 66th Session of the WHO Regional Committee for Europe in September 2016.

More information about the relevance of the SDGs to kidney disease can also be read in the recent contribution of Dr. Valerie Luyckx on this topic in The Lancet Kidney Campaign.

We hope that the international community and member states will demonstrate strong progress in the implementation of the UN Agenda 2030 framework as a successful model to be used as inspiration and impetus for other regions of the world.

Stay tuned for more information!

NON COMMUNICABLE DISEASES

Kidney disease is one of the “neglected” NCDs in spite of the clear indication that across the world deaths from kidney disease are increasing globally as highlighted by a systematic analysis of global mortality for the Global Burden of Disease study.

Kidney disease does indeed not currently feature among the 4 major non-communicable diseases (NCDs) specifically targeted by the World Health Organisation (WHO) or other relevant international organisations.

ISN recognises the current status as a challenge and therefore focuses its efforts on building a stronger profile and understanding of kidney disease and identifying specific opportunities where ISN can make a relevant and valuable contribution to the ongoing work of the WHO and other related international organisations (e.g. the UN).

Through these efforts, ISN hopes to demonstrate the importance of acting on kidney disease – as a major NCD and as an amplifier of other NCDs, such as diabetes and cardiovascular disease (CVD). ↓ show more

As a first step in this direction, in June 2016, ISN joined the World Heart Federation and other leading health organizations in signing the Mexico Declaration on Circulatory Health for All People which calls on international organisations such as WHO and national governments to ensure better prevention, diagnosis and management of circulatory disease, its risk factors and other related non-communicable diseases, including kidney disease. In July 2017, ISN joined the Global Coalition for Circulatory Health which brings together international, regional and national stakeholders in circulatory health to drive the urgent action needed to combat heart disease and stroke, in preparation for the Third United Nations High-Level Meeting on Noncommunicable Diseases (NCDs) in 2018.

In September 2016, ISN was invited to participate to a WHO stakeholder consultation on the revision of Appendix 3 of the WHO Global NCD Action Plan 2013-2020. In the consultation response, ISN stressed the importance of kidney disease as a ’neglected’ disease which raises important public health concerns worldwide and should be put high on the agenda. ISN has also brought the attention of the international healthcare community to the underestimated link between diabetes, cardiovascular diseases and kidney disease by recommending early detection of kidney disease in diabetes and CVD patients in order to improve outcomes.

ISN's response to WHO Appendix 3 consultation is available here.

Stay tuned for more information!

Obesity

Obesity increases the risk for a variety of chronic conditions, but the important role it plays in the development and progression of kidney disease is rarely acknowledged. By adopting a healthy diet, increasing physical activity, ensuring healthy fluid intake and getting adequate sleep, individuals can prevent obesity and many other possible risk factors of CKD. The fight against obesity however cannot rely entirely on personal responsibility. Governments, healthcare professionals, the private sector, educators and community leaders must acknowledge the magnitude of the burden of obesity and kidney disease and implement the following population based policies and strategies to complement individual efforts.

On World Kidney Day 2017, ISN together with the International Federation of Kidney Foundations and the World Obesity Federation published a joint position statement. The position provides facts on the important role obesity plays in the development and progression of kidney disease. The position also illustrates joint risk factors shared by obese and kidney disease patients such as cardiovascular disease, diabetes and hypertension. Hence the policy measures presented in the final part of the position provide pertinent strategies for policy-makers to tackle the root causes of kidney disease and obesity as well as of a variety of other chronic diseases in a cost-effective way.
You can download the position paper HERE

ORGAN DONATION AND TRANSPLANTATION

In December 2006, concerned by the ongoing problems of international organ trafficking and the global shortage of organs for transplantation, representatives from the International Society of Nephrology met with representatives of The Transplantation Society and conceived the idea of developing a formal Declaration that would serve to inspire and unite all those engaged in combating unethical practices in organ transplantation.

This debate culminated with the Declaration of Istanbul on Organ Trafficking and Transplant Tourism.

ISN continues to strive to raise awareness about the challenges and large differences between countries in access to suitable and equitable renal replacement therapy including transplantation and in the level of safety, quality, efficacy of donation and transplantation of human cells, tissues and organs.

Stay tuned for more information!

Policy Papers & Publications

NEW PUBLICATION! ISN contributes to the upcoming high level discussion on Universal Health Coverage.

	Global kidney policy forum series: Focus on South East Asia and Oceania 2019 [July 2019]
	Moving Together to Build Kidney Health World Wide [April 2019]		White Paper for Circulatory Health [November 2018]
	A call to action on Kidney Disease: 2018 High-Level Meeting on NCDs [March 2018]		Kidney disease in women. A call to action [March 2018]
	Global kidney policy forum series: Focus on Latin America [April 2017] - English - Spanish		Kidney disease and obesity [March 2017] - English - Spanish - French - Russian - Chinese

12 Recommendations to Global Kidney Health

Pledge your support to our 12 recommendations to Global Kidney Health!

Kidney disease is increasingly being recognized as an important contributor to the global non-communicable disease (NCD) burden. With over 850 million people world-wide affected, kidney disease is a global public health priority.

During the first Global Kidney Policy Forum, which took place in April 2017, stakeholders interested in addressing the growing burden of kidney disease gathered to describe, discuss and develop a set of 12 Recommendations to Global Kidney Health to guide future efforts to reduce the burden of kidney disease worldwide.

On the occasion of the second ISN Global Kidney Policy Forum at World Congress of Nephrology in Melbourne on 12 April 2019, ISN is calling on stakeholders committed to addressing the growing burden of kidney disease to pledge their support to reduce the burden of kidney disease and widely share the 12 Recommendations to Global Kidney Health.

Join ISN’s call and express your support of the 12 Recommendations of Global Kidney Health by clicking on the button below:

12 recommendations to Global Kidney Health:

Download the English version
Download the French version

ISN 12 RECOMMENDATIONS TO GLOBAL KIDNEY HEALTH

1. Work within current frameworks promoted by the World Health Organization and the United Nations such the Sustainable Development Goals of Agenda 2030 for Sustainable Development, Universal Health Coverage, and Life Course approach in the context of Health 2020 to develop and implement policies to ensure integration and synergies for kidney disease prevention and treatment within existing initiatives.

2. Develop and implement public health policies to prevent or reduce risk factors for chronic kidney disease in adults and children, including strategies to promote maternal and child health and nutrition, to reduce the burdens of diabetes, hypertension, obesity and tobacco consumption, to promote safe work environments and prevent infectious diseases.

3. Implement and support ongoing surveillance mechanisms to better understand and quantitate the burdens of acute and chronic kidney disease within and outside the context of non-communicable diseases, specifically by developing robust national and regional registries for AKI, CKD and ESKD.

4. Educate the public and people at risk about kidney disease within non-communicable disease education campaigns.

5. Improve awareness of kidney disease among health care workers at all levels and ensure appropriate access to essential tools and medications required for diagnosis and treatment.

6. Work towards universal health coverage to permit sustainable access to effective and affordable medication (for hypertension, diabetes, cardiovascular disease) to treat risk factors for kidney disease and delay kidney disease progression.

7. Support education for a skilled nephrology workforce to implement prevention and treatment of kidney disease at all stages.

8. Implement early detection, preventive and treatment strategies for AKI.

9. Integrate early evidence-based treatment for CKD acknowledging the important synergies with diabetes, hypertension and cardiovascular disease.

10. Develop and implement transparent policies governing just and equitable access to kidney disease care including dialysis and transplantation, according to international standards, and to support, safe, ethical, affordable and sustainable programs.

11. Promote and expand kidney transplantation programs within countries and across the region.

12. Support local, regional and transnational research on kidney disease to further understanding of prevention and treatment strategies.

Past Campaigns

The 2018 United Nations High-Level Meeting on Non-Communicable Diseases (UN HLM on NCDs) on 27 September 2018 has represented a vital opportunity to review – at the highest political level – the recent progress achieved by member states and the need for renewed action and collaboration to address the global NCD crisis. Kidney disease - the 11th leading cause of death globally – is a rapidly growing health burden and poses a significant health care challenge for governments, particularly in low-and middle-income countries.

Neglected in global NCDs discussion to date, kidney disease is a high priority NCD which now requires urgent consideration by political leaders. In follow up to the UN HLM on NCDs which provided a platform for raising awareness of NCD health care and monitoring needs, targeted action on kidney disease should become integral to the global policy response.

For this purpose, ISN launched a Call to Action on Kidney Disease to inform decision-makers of tackling this disease and highlight best practice policy solutions.

Outcomes of the 2018 UN High-Level Meeting on NCDs: the kidney perspective

ISN was invited to attend the UN HLM on NCDs in its capacity of non-state actor in official relations with WHO. ISN was given a chance to submit a statement to contribute to the discussions in writing which is accessible here.You can also review our full report and ISN analysis of the of the UN High-Level Meeting on NCDs outcomes here. The meeting culminated in the adoption of the Political Declaration of the HLM2018.

ISN welcomes the emphasis of Political Declaration on the need of a multi-sectoral and integrated approach to disease management and the commitment to whole-of-society, health in all policies, equity-based and life-course approaches to disease care. In the follow up to the 2018 HLM on NCDs, we however urge member states to ensure that no disease is left behind and that kidney disease is fully integrated in national NCDs health management strategies.

How you can build on the momentum of the 2018 HLM on NCDs and support ISN's Call to Action on Kidney Disease?

You are a stakeholder that participated in the process of the 2018 HLM on NCDs: urge your head of state or minister of health to meet the commitments made in the Political Declaration and address the omit of kidney disease in the global NCD agenda to date by supporting commitments to the actions outlined in ISN’s campaign priorities paper. You can use our suggested template letter here.
You are a national policy maker: Support the implementation of the policy asks outlined in ISN’s campaign priorities paper and encourage your administration to raise the profile of kidney disease in follow up to the 2018 HLM on NCDs.
You are a civil society organization (NGO, association, foundation), publisher or media representative: Spread the message of ISN’s policy asks and help us reach a wider audience worldwide. Contact your policy liaisons and ask them to support the policy asks of the ISN's campaign priorities paper and to implement them at local level. Contribute to any upcoming public consultations. Be active on social media!

Download the ISN campaign priorities paper and supporting materials here:

ISN campaign priorities

English

French

Chinese

Social media graphics

Template letter to send to policy makers
[10 April 2018]

Public Consultation of the WHO High Level Commission on NCDs - ISN response

Template letter to send to policy makers [14 November 2019] UPDATED!

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News and Events

February 2020

The ISN is pleased to represent the kidney health community at the upcoming Non-Communicable Diseases Alliance (NCDA) Third Forum (in Sharja. UAE) from the 9th to the 11th of February 2020. On 10th February 2020, ISN Advocacy Director will moderate a workshop entitled “Building coalitions and social movements to address NCD multi-morbidities: Health systems for people, not siloes for diseases” and contribute to the discussion by bringing the table the needs of the over 850 million people affected by kidney disease globally. To read the full programme, click here.

ISN fully supports the objectives of the Forum which will be focusing on “Bridging the Gap” in NCDs management globally and accelerating the translation from political commitments into action.

Follow our activities at the NCDA Forum on the ISN Twitter account!

ISN was invited and pleased to attend the 146th Session of the Executive Board (EB) of the World Health Organization (WHO) from February 3-8, 2020.

This year, the EB Meeting addressed topics extremely relevant to kidney patients, such as the advancement of primary care and the implementation of the recent Political Declaration on Universal Health Coverage and noncommunicable diseases (NCDs).

In this context, ISN called on the WHO and Member States to recognize the immense burden of kidney disease worldwide and asked for urgent measures to ensure that kidney health is fully integrated in national NCD plans.

On the occasion of the EB meeting, Charu Malik, ISN Executive Director, said: “ISN is proud to represent the kidney health community. We call for an integrated approach to kidney care that is people-centered and leaves no one behind. Action is needed now for the 850 million people affected by kidney disease globally!’

Read the oral statements ISN made at the EB meeting here:

Statement on Item 146.5
Statement on Item 146.6
Statement on Item 146.22.3
Statement on item 146.7.2

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November 2019

On the 12th of November 2019, the Alliance for Health Promotion held the 9th Global Forum on Health Promotion in partnership with the WHO. The theme of this year’s event was “A Critical Pathway to Achieving Universal Health Coverage”. The event was opened by WHO Director General, Dr. Tedros who reminded participants and all stakeholders involved in global health that “universal health coverage is not a choice a country makes once. It’s a choice that must be made every day, in every policy decision. Disease patterns are always changing, and so are the needs and demands of populations. There are always people at risk of being left behind.”

The ISN was invited to attend the event and was represented by Dr. Valerie Luyckx, who joined the discussions amongst representatives of governments, civil society and international organizations. Participants discussed how to put in practice the historical political declaration in UHC adopted by the UN High-Level Meeting regarding UHC on the 23rd of September 2019. ISN as well as many of the panel speakers highlighted the importance of health promotion in order to prevent disease and reduce catastrophic health expenditure. To do so, it is essential to adopt a multi-sectoral approach in implementing policies, as an adequate health promotion requires environmental, infrastructural and cultural policy interventions.

To learn more about the event, visit: https://www.who.int/healthpromotion/9th-global-forum/en/

September 2019

ISN leads kidney health discussions at the United Nations General Assembly in New York

On September 23, 2019 in New York, during the yearly United Nations General Assembly, Member States adopted a high-level Political Declaration on Universal Health Coverage (UHC). This landmark decision will increase the pressure on national governments to ensure equal access to essential health services without imposing financial hardship on patients.

While the declaration represents a key development in global health, it is also a major milestone in the ISN's advocacy efforts, which are focused on healthcare as a human right, people’s centred approach to care and the implementation of an integrated and inclusive approach to healthcare at the core of UHC. To download ISN’s statements at the high-level meeting, click here.

Furthermore, the Global Coalition for Circulatory Health – of which ISN is a member – organized a side event addressing how multi-morbidities prevention and control can improve circulatory health management. The event took place on the 24th of September and was hosted the American Heart Federation. Click here to download the event programme. The aim of the meeting was to assess which measures are needed in order to ensure that health systems respond to the increasing burden of multi-morbidities. The ISN President, Vivek Jha, was a keynote speaker at the event.

The ISN's work during the UN General Assembly has further enhanced its growing reputation as an effective global health advocacy body.

May 2019

ISN is leading efforts towards advancing UHC for kidney disease at the 72^nd World Health Assembly 2019

On May 20th 2019, the ISN was proud to attend the 72nd World Health Organization General Assembly as the global leading society representing nephrology and renal healthcare.
At the Assembly, we joined discussions on Universal Health Coverage (UHC), the advance of the Agenda 2030 and increased access to medicines.
As part of our dedicated advocacy campaign to advance kidney health in the global political agenda, ISN participation will be crucial in calling for comprehensive integrated healthcare services which address kidney disease and preparing for the upcoming United Nations Political Declaration on UHC.

Watch the 72WHA debate live

ISN statements on Universal health coverage (UHC):
Primary health care towards universal health coverage
Preparation for the high-level meeting of the United Nations General Assembly on
universal health coverage
Access to medicines and vaccines

April 2019

ISN launches new publication at UN Interactive Hearing on Universal Health coverage

On 29 April 2019, ISN has been invited to attend and speak at the UN Interactive Hearing on Universal Health Coverage (UHC) convened in preparation for the UN General Assembly's (UNGA) High-level Meeting on UHC (23 September 2019). The issue of how to move together to build a healthier world through UHC discussed by representatives of national governments and the WHO, as well as stakeholders from the health civil society, including ISN. At the meeting, ISN stressed the need to ensure that member states design UHC with the specific needs of kidney disease and other NCDs in mind, i.e. financial protection, comprehensive and integrated services, improved focus on early prevention and a health in all policies approach.

You can read ISN'd position paper here.

ISN written statement is available here.

January 2019

ISN participation to WHO 144th EB meeting - 24th January to 1st February 2019

ISN participated at the 144th Executive Board of the World Health Organization which took place in Geneva from 24th January to 1st February. During the meeting, ISN, which is the only kidney organisation in official relations with the WHO, was asked to take the floor. We underlined that around 850 million people worldwide live with some form of kidney disease, with chronic kidney disease predicted to become the 5th leading cause of years of life lost by 2040. Furthermore, we called on to member states to deliver health systems with integrated and comprehensive services aimed at prevention, early detection and treatment of all NCDs including kidney disease, leaving no disease behind.

ISN's written and oral statements at the WHO EB meeting are available below:
Access to Medicines
Agenda 2030
Universal Health Coverage

October 2018

UN High-Level Meeting 2018: targeted action on kidney disease

September 2018

United Nations General Assembly

ISN attends the UN High Level Meeting on NCDs 2018

On 27th September 2018, ISN attended the United Nations High Level Meeting on Non-Communicable Diseases (NCDs) in New York. The meeting was attended by the Heads of states and Health ministers from over 70 countries worldwide. ISN was the only kidney organisation invited to attend the meeting. You can read the ISN’s official statement delivered at the meeting here. For additional information also see: ISN at UN General Assembly to highlight the cause of kidney patients

ISN launches the White Paper for Circulatory Health

On Tuesday 25th September ISN launched the White Paper for Circulatory Health calling for an integrated approach to disease management which brings kidney disease at the core of circulatory health. ISN was one of the 4 co-organisers (together with the World Heart Federation, World Hypertension League, World Stroke Federation) of the high level event which marked the launch of the paper. Key note speakers included EU Commissioner for Health and Food Safety, Vytenis Andriukaitis and Health Minister for Jamaica, Dr the Hon. Christopher Tufton strongly endorsed the White Paper and called for its implementation by member states. You can read the main asks of the White Paper for Circulatory Health here.

EU Commissioner for Health and Food
Safety, Vytenis Andriukaitis speaking
at the launch of the White Paper
on Circulatory Health

ISN at UN General Assembly to highlight the cause of kidney patients

August 2018

Update to the Declaration of Istanbul on Organ Trafficking and Transplant Tourism

Statement of Concern - Political Declaration, Third UN High-Level Meeting on NCDs

July 2018

ISN attends the UN Interactive Hearing on NCDs

On 5^thJuly 2018, ISN was invited to attend and speak at the UN Interactive Hearing on non-communicable diseases (NCDs), as part of the UN preparations to the High Level Meeting on NCDs. The issue of how to tackle NCDs was discussed by representatives of national governments and the WHO, as well as stakeholders from the health civil society, including ISN. At the meeting, ISN stressed the need to ensure that member states implement a comprehensive and integrated approach to disease management which leaves no disease behind. You can read ISN’s official statement here.

Taking action on ESKD

June 2018

The under-recognized epidemic: Worldwide, over 850 million people suffer from kidney diseases

May 2018

Contributing to this year’s World Health Assembly

ISN presence at the World Health Assembly

April 2018

ISN joins NCD Alliance as a full member

March 2018

ISN launches advocacy campaign to address kidney disease as a priority

ISN contributes to new technical package for integrated NCD management in primary health care

On March 7, the updated HEARTS package was published. It was developed under the auspices of the Global Hearts Initiative, led by WHO and the US Centers for Disease Control and Prevention.
ISN, a partner of the broader Global Hearts Initiative, was actively engaged and consulted in the updating process. The package comprises six modules and an implementation guide. This package supports Ministries of Health to strengthen management of cardio-vascular diseases (CVD) and common co-morbidities such as kidney disease (KD) in primary health care settings. The practical, step-by step modules are supported by an overarching technical document that provides a rationale and framework for this integrated approach to the management of NCDs.

To learn more about the HEARTS initiative and to access the updated HEARTS package, please go to: http://www.who.int/cardiovascular_diseases/hearts/en/

ISN encourages its members and the nephrology community as a whole to champion the use and implementation of the HEARTS package at national level to improve CVD management and to prevent avoidable deaths from CVD and KD.

February 2018

ISN publishes summary in support of DICG concerns on kidney transplant pairing scheme

The summary reiterates the key points of a recent position paper of the Declaration of Istanbul Custodian Group (DICG) on the Global Kidney Exchange (GKE) Program created by the Alliance for Paired Kidney Donation. While esteemed well-intentioned, ISN and the DICG warn of the program's potential to create a new category of international organ trafficking and encourage health authorities in both high and lower and middle-income countries to prioritise other means of increasing deceased and living related donation instead, as well as to develop domestic kidney paired donation programs, and generally to improve access to transplantation in their countries. You can access the ISN summary here.

January 2018

ISN continues official relations with WHO for 3 more years

Last week, the World Health Organization (WHO) approved our proposed three-year joint work plan and prolonged our privileged status as a non-state actor in official relations with WHO. Over the next three years, we will collaborate with the WHO to provide technical assistance to low-and middle-income countries wanting to expand end-stage kidney disease care. We will promote the uptake of the technical HEARTS package, gather evidence on chronic kidney disease of unknown origin and raise the profile of the second edition of the Global Kidney Health Atlas.

"We are delighted to have these opportunities to advance global kidney care." said ISN Advocacy Portfolio Director Adeera Levin on the occasion.

November 2017

Special Session of the WHO Executive Board

ISN took part in the WHO Special Session of the WHO Executive Board to discuss the first draft of General Programme of Work 2019-2023. ISN's main suggestions to the WHO's proposed general programme of work are available here.

WHO regional office for the Western Pacific

During the meeting of the WHO regional office for the Western Pacific, held in Brisbane, Australia, ISN presented a written statement on the Regional Action Plan on Health Promotion in the Sustainable Development Goals (2018–2030) to highlight the importance of mobilizing intersectoral, whole-of-government and whole-of-society actions that leave no one behind and secure the prerequisites for health.

In this context, ISN also called on Member States to recognize the immense burden of kidney disease worldwide, and expressed its hopes that such actions promise to have a positive impact on kidney disease globally.

October 2017

Global Conference on NCDs

During the Global Conference on NCDs in Montevideo in October 2017, ISN showcased its Saving Young Lives project as a cost-effective intervention to reduce the burden of premature death from NCDs in line with the UN Sustainable Development Goals (SDG 3.4). Four hundred participants, including heads of state of Argentina, Chile, Morocco, Paraguay, Uruguay, Zimbabwe, saw the adoption of the Montevideo Roadmap 2018-2030 on NCDs as a Sustainable Development priority.

In its reactions to the roadmap, ISN has called for more coordinated and coherent action from all policy sectors and criticized the lack of bold commitment and concrete suggestions on how to achieve SDG 3.4.

September 2017

WHO regional committee for Europe

At the annual session of the WHO regional committee for Europe in Budapest, Hungary, ISN collaborated with the World Heart Federation (WHF), as well as with World Cancer Research Fund International, European Public Health Alliance and WHF on a joint oral statement on the risk of unhealthy diets for NCDs such as kidney disease. The statement is available here.

Regional meeting of the Pan American Health Organization (PAHO)

The regional meeting of the Pan American Health Organization (PAHO) in Washington was particularly relevant for ISN’s work on Chronic Kidney Disease of Unknown Origin (CKDu) with a session of the meeting dedicated to this alarming global health threat. ISN contributed to the discussion with a written statement endorsing the actions recommended by PAHO and calling on Member States, governments and institutions to draw more attention to CKDu, increase research and funds, and promote advocacy and awareness.

April 2017

ISN Global Kidney Policy Forum, 21 April 2017, World Congress of Nephrology, Mexico City

In partnership with the Mexican Ministry of Health and with the participation of The Lancet, on 21 April 2017, ISN brought together high-level decision-makers and stakeholders to address the burden of kidney disease in the Americas region and share strategies for prevention and improved management of the disease at both the regional and global level. Participants included representatives from national health ministries, international and regional health organisations, key opinion leaders, and representatives of the wider health community.

The main outcome of the Policy Forum for the endorsement by participants the Conclusions of Mexico City, a 12-point set of measurable actions to curb the burden of kidney disease worldwide, specifically focusing on Latin America. The Conclusions are available in English as well and they call for key measures aimed at developing and implementing integrated non-communicable disease programs addressing chronic kidney disease (CKD) risk factors; implementing and support surveillance mechanisms such as robust national and regional registries for acute kidney injury, CKD and end-stage kidney disease, and crucially ensuring just and equitable access to kidney disease care including dialysis and transplantation.

For more infomation about the outcome of the first Policy Forum, please click here.

You can also download the Global Kidney Policy Forum brochure in English here and in Spanish The Lancet Kidney Campaign

The Global Kidney Policy Forum will be the first in a series of ISN Policy Forum meetings that will take place at regular intervals. The unique format will provide an opportunity to bring an international viewpoint on key issues related to the prevention and management of kidney care disease, which impact a particular country or region. The meeting will culminate in a clear call for action to national, regional and global policy makers.

The second Global Kidney Policy Forum is going to take place in Melbourne on Friday, 12 April 2019. Stay tuned for more information!

March 2017

New study finds: Cost of kidney dialysis poses ethical dilemma in sub-Saharan Africa

A recent article co-authored by ISN Associate Dr. Valerie A. Luyckx summarizes the findings of a systematic literature review to dialysis care in Sub-Saharan Africa. The article finds that access to dialysis for end-stage kidney disease is limited by insufficient infrastructure and catastrophic out-of-pocket costs. This leads to most patients either remaining undiagnosed or untreated. The majority of those who manage to pull together the money needed to start dialysis, discontinue quickly within the first weeks, most likely indebted and fatally ill. Equitable and sustainable strategies to manage individuals with ESKD in Sub-Saharan Africa are urgently needed.
Please read the full article here.

World Kidney Day 2017 - Joint position on obesity and kidney disease with World Obesity Federation

February 2017

Ethical dialysis: New article presents preliminary recommendations to guide practice and policy

In a new article ISN's Ethical Dialysis Task Force adresses the lack of ethical analysis and guidance available to decision makers on the dilemmas linked to renal-replacement therapy. These include how to promote patients' best interests; increase access to dialysis while maintaining procedural and distributive justice; minimise the influence of financial incentives and competing interests; ensure quality of care in service delivery and access to non-dialytic supportive care when needed; minimise the financial burden on patients and health-care system; and protect the interests of vulnerable groups during crisis situations.
Please access the full article.

ISN DICG at Vatican City Summit on organ trafficking and transplant tourism

January 2017

ISN speaks at the first 2017 meeting of the World Health Organisation’s Executive Board

In its capacity as a non-state actor in formal ‘official relations’ with WHO, ISN attended the 140th World Health Organization (WHO) Executive Board meeting in Geneva which took place from 23 January – 1 February 2017. ISN made two statements commenting on WHO's ongoing processes, relevant to ISN’s advocacy work, namely the WHO’s action plan on non-communicable diseases and the progress made with regards to health in the Sustainable Development Goals agenda 2030.Both statements underlined the need to address the global burden of kidney disease and adopt a holistic and service integrated approach to tackling kidney disease throughout the entire life course.
For more information on the 140th session of the Executive Board, please see: http://www.who.int/mediacentre/events/2017/eb140/en/
To read ISN statements, please go to: https://extranet.who.int/nonstateactorsstatements/meetingoutline/7

December 2016

ISN marks Universal Health Coverage Day!

On 12 December 2017, ISN will mark Universal Health Coverage Day (UHC). ISN believes that everyone has the right to quality health care without suffering ﬁnancial hardship and calls on governments to integrate strategies for prevention, early detection and treatment of kidney disease into their efforts to achieve UHC and to ensure access to essential care to delay the progression of kidney disease. For more information about UHC Day, please view: http://universalhealthcoverageday.org/welcome/

November 2016

The ISN Meeting on CKDu, 20 November 2016, Conference Chicago University Center, Chicago

In order to support the creation of a systematic, nephrology-based approach to investigating the epidemiology and etiology of CKDu, ISN brought together key opinion leaders and experts with a view to examine what is currently known in the area of CKDu from published data, to review the ongoing work and frameworks proposed in specific research areas and subsequently highlight the scientific 'unknowns' of CKDu and the next steps to tackle them appropriately.

Stay tuned for more information on the outcome and key output of the meeting!

October 2016

Leading global organisations partner with Lancet Kidney Campaign

ISN support World Obesity Day!

Global Burden of Disease Study 2015 outlines chronic kidney disease as a cause of death worldwide

September 2016

ISN contributes to WHO stakeholder consultation on tackling NCDs

DICG activities at the TTS congress in Hong Kong

ISN participates in high-level WHO meeting in Copenhagen

July 2016

Global experts and leaders devise a new blueprint for kidney care

Coming up: The ISN Global Kidney Health Summit