Privacy policy ISN

Short

The ISN located at Avenue Des Arts 1-2, B-1210, Brussels, Belgium is responsible for the processing of your Personal Data, via its website www.theisn.org.

The ISN processes data from the visitors and/or users for the following purposes:

  • Executing and offering the services of The ISN;
    • Member Administration;
    • Program & Event registration;
    • Education & e-learning;
    • Scientific research;
    • Statistical research;
    • Evaluation of health care;
    • Library management;
    • Administration of middlemen (teachers, tutors, experts);
    • Direct marketing;
    • Collecting funds;
  • Management of requests for information;
  • Improvement of the operation of The ISN & the Website;
  • To provide all other services you have requested;
  • Compliance with applicable legislation or a valid & competent court or administrative order.

You can always request access to – and rectification or erasure of Personal Data or to restrict the processing; as well as the right to object to processing, the right to data portability and the right to withdraw your consent at all times.

Personal Data are transferred to following recipients:

  • Processors that provide statistical research and analysis;
  • Processors who provide hosting of this Website and related databases;
  • Processors who provide education & e-learning services;
  • Processors who provide payment processing services;
  • Companies associated with The ISN, including without limitation: World Kidney Fund – International Society of Nephrology Foundation – Europe;
  • Other ISN members, through the ISN member directory;
  • ISN publishing partners in order to send publications;

1. Definitions

In this Privacy Statement the following terms are defined as follows:

  1. The ISN: The International Society of Nephrology (ISN) is registered in the state of New Jersey (USA) as a 501(c)3 not-for-profit organization, with EIN number 59-1776707 and with its centre of operations located at with its registered offices at Avenue Des Arts 1-2, B-1210, Brussels, Belgium.
  2. Website: the website of The ISN, www.theisn.org, and derivative websites and subdomains developed and administered by The ISN.
  3. Personal Data: Any information relating to an identified or identifiable natural person.
  4. Processing: Any operation or set of operations which is performed on personal data or on sets of personal data, whether or not by automated means, such as collection, recording, organisation, structuring, storage, adaptation or alteration, retrieval, consultation, use, disclosure by transmission, dissemination or otherwise making available, alignment or combination, restriction, erasure or destruction.

2. Processing of personal data

This Privacy Statement is applicable to all Processing activities undertaken by The ISN, unless further transparency is provided, through e.g. disclaimers, by electronic means or orally.

The ISN attaches great importance to respecting and protecting your privacy and the confidentiality and safety of your Personal Data.

By accessing this Website and/or disclosing your Personal Data you expressly consent to the processing of Personal Data in accordance with the conditions set out in this Privacy Statement.

Your Personal Data is Processed in accordance with Regulation (EU) 2016/679 (hereinafter ‘GDPR’) including any implementing laws and any changes thereto. These regulations are hereinafter commonly referred to as ‘Data Protection Legislation’.

In this regard The ISN acts as the data controller for the purposes of this Privacy Statement, meaning that it determines the why and how your Personal Data are Processed.

3. What information

The ISN may process Personal Data via its Website, through including without limitation, the contact form, newsletter form and cookies. The Personal Data that is actually Processed may depend upon the requested services and purposes of said Processing.

ISN may Process following Personal Data pertaining to Website visitors:

  • Information about your PC or mobile device and your visits and use of the Website, including your IP address, operating system, browser type and geographical location;
  • Personal contact information that you provide by using the contact form or newsletter form, such as your first name, last name and email address;
  • Any other information that you choose to provide, by any means.

The ISN may Process following Personal Data of its (prospective) members and subscribers:

  • Personal contact information that is provided to us, such as your first name, last name, email address, telephone number, mobile number, payment information;
  • Financial identification data such as bank-account number in order to i.a. process membership fees;
  • Occupation & employment data;
  • Direct marketing preferences;
  • Education & training data, such a progress that is made through e-learning courses;
  • Membership details;
  • Survey data;
  • Any other information that you choose to provide, by any means.

The ISN may Process following Personal Data of (prospective) mentors, tutors and other educators and experts:

  • Personal contact information that is provided to us, such as your first name, last name, email address, telephone number, mobile number, payment information;
  • Occupation & employment data, including through submitted CV’s and certifications;
  • Any other information that you choose to provide, by any means.

The ISN may Process following Personal Data of survey participants:

  • Personal contact information that is provided to us, such as your first name, last name, email address, telephone number, mobile number, payment information;
  • Any other information required in the survey for scientific & statistical research purposes.

In addition, The ISN may Process Personal Data that it has received from third parties relating to you, i.a. when a colleague or your organisation signs you up for our membership.

The fields of relevant forms denoted with (*) are strictly necessary for the purposes of Processing, if one or more of these fields are not completed the form will not be executed. Other fields can be completed to better facilitate the provision of services by The ISN.

4. Purposes of processing

The ISN collects and processes Personal Data for one or multiple of following purposes:

 

Purposes Legal basis
Member Administration; Performance of a contract
Program and event registration; Performance of a contract
Education & e-learning services; Performance of a contract
Statistical research; Consent/ Legitimate interests of The ISN1
Evaluation of health care; Consent/ Legitimate interests of The ISN2
Library management; Performance of a contract
Administration of middlemen (teachers, tutors, experts); Performance of a contract/ Consent
Direct marketing; Consent/ Legitimate interests of The ISN3
Collecting funds; Performance of a contract
Management of requests for information Performance of a contract
To provide all other services you have requested Performance of a contract/ Consent

If The ISN wishes to use Personal Data for an incompatible new purpose The ISN will request your consent prior to this new use, unless such Processing is required by Union or national law.

When the Processing is based on your consent, you have the right to withdraw consent at any time, without affecting the lawfulness of Processing based on consent before its withdrawal.

5. Transfers of personal data

The ISN does not rent or sell your Personal Data to third parties for use for their own purposes.

Within The ISN the Personal Data is passed on only to personnel on a ‘’need to know’ basis.

The ISN can make use of data processors to Process your Personal Data. Data processors are natural or legal persons, public authorities, agencies or other bodies which process Personal Data on behalf of The ISN.

The ISN can transfer the Personal Data to following (categories of) recipients:

  • Processors that provide statistical research and analysis;
  • Processors who provide hosting of this Website and related databases;
  • Processors who provide education & e-learning services;
  • Processors who provide payment processing services;
  • Recipients associated with The ISN, including without limitation: World Kidney Fund – International Society of Nephrology Foundation – Europe;
  • Other ISN members, through the ISN member directory;
  • ISN publishing partners in order to send publications;

Personal Data may be processed by these recipients outside the European Economic Area, The ISN will make sure appropriate safeguards are implemented. You can obtain a copy of the guaranteed measures upon written request.

The ISN may alter its corporate structure through including changing legal form, merger, acquisitions and sale of affiliates, in such transactions Personal Data will be passed on in accordance with this Privacy Statement and applicable Data Protection Legislation.

6. Personal data storage duration

The Personal Data are kept by ISN, in any case during the duration of the relevant agreements and for a period equal to the statutory period of limitation thereafter. In addition, Personal Data is kept for as long as required by law and no longer than necessary for the processing purposes described above.

7. Your rights

You are entitled to request from us access to and rectification or erasure of Personal Data or restriction of processing or to object to Processing as well as the right to data portability. For this purpose you should send your dated and signed request to The ISN, Avenue Des Arts 1-2, B-1210, Brussels, Belgium, enclosing a copy of your identity card4, or you can contact The ISN via email at info@theisn.org and furnish your email with an electronic signature.

Within one month of the submission of the request, you will be informed of the follow-up given to it.

You have the right to withdraw your consent for a particular Processing activity at any time, without this affecting the lawfulness of the processing on the basis of the consent before its withdrawal. In case you have given your permission to receive newsletters and advertising, you can withdraw it by changing your account settings or using the “unsubscribe / unsubscribe” link in this communication.

Finally, you have at all times the right to submit a complaint to the supervisory authority.

The ISN makes use of automated decision making, including profiling, for following Processing activities:

Activity Information
Membership Administration Based on the prospective members location its membership fee is calculated by solely automated means based on the World Bank Classification.
Statistical research Through clicking on specific articles, a profile of interests is built

You have the right to obtain human intervention on the part of The ISN, to express your point of view and to contest the decision, by contacting us as provided above.

8. Anonymous data

The ISN is permitted to collect non-personal and anonymous data when the Website is visited and anonymize personal data. This data does not allow The ISN to proceed to identify an individual person and this data can be shared with third parties, including for statistical purposes.

9. Cookies

This Websites makes use of cookies to enhance the browsing experience. For more information regarding the use of cookies, please refer to our Cookie Statement.

10. Changes

The ISN reserves the right to continually update this Privacy Statement.

This Privacy Statement was last updated: 5 February 2021. Version 1.2.

11. Miscellaneous

If any of the provisions of this Privacy Statement would be wholly or partially annulled by a binding decision, this shall have no effect whatsoever on the other provisions of this Privacy Statement. The ISN is entitled to modify or replace such a provision by another provision which, within legal limits, has the same effect.

The failure of The ISN to demand strict compliance with the provisions of this Privacy Statement shall not be construed as a waiver or rejection thereof.

12. Applicable law

By visiting the Website and thus expressly accepting this Privacy Statement and the conditions therein, you agree that any dispute or claim relating to this Privacy Statement and the processing of Personal Data shall be governed by Belgian law and the exclusive jurisdiction of the courts of Brussels (Belgium).

14. Contact

If you have any questions or comments regarding the policy concerning the processing of Personal Data after reading this Privacy Statement, please contact the contact person at the address Avenue Des Arts 1-2, B-1210, Brussels, Belgium or you can contact The ISN via email at info@theisn.org.

Please send requests for additional general information concerning the protection of personal privacy to the Belgian Data Protection Authority to the address, 35 Drukpersstraat, B-1000 Brussels telephone number: +32 (0)2 274 48 00 or via email at contact@apd-gba.be (https://www.gegevensbeschermingsautoriteit.be/).

1 It is in the interest of The ISN to perform statistical research and analysis in order to monitor and measures specific metrics and allows for informed decision making. Such information may subsequently be used to improve user experience.
2 As a professional organisation The ISN is dedicated to advancing worldwide kidney health, as such it has a vested interested in evaluating how kidney healthcare is provided in order to better serve it’s members who in turn can use such information to better serve its patients.
3 It is in the interest of The ISN to be able to provide direct marketing information to persons, in particular to persons for whom it has provided certain services, in order to inform them about similar services that The ISN provides.