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Background

The SharE-RR team will develop resources that kidney health advocates can use to assist the establishment or development of a renal registry in their countries.

Renal registry data can be used to improve awareness of the burden of chronic kidney disease (CKD) and end-stage kidney disease (ESKD) amongst health policy makers and funders through initiatives such as the Global Burden of Disease project. Such data can also provide critical information to support the planning, delivery and evaluation of renal services, highlighting discrepancies in service provision within and between countries and informing the allocation of resources and planning of services. Registry data can also help identify the most important causes of kidney disease in different countries and thereby guide efforts to prevent, detect and treat the early stages of CKD.

Renal registries have been collecting data on ESKD treatment rates in Australia/New Zealand, Europe and North America for up to 50 years. There are also very successful renal registries in Latin America, Africa and Malaysia. However, many low- and middle-income countries (and some high-income countries) do not have renal registries, or if they do they collect data on an incomplete, voluntary basis and at an aggregate level. The international chapter of the USRDS Annual Data Report provides a good summary of these data.

 

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