Data Collection

It is likely that people with kidney disease will be disproportionately affected by the current COVID-19 pandemic, either directly by infection or indirectly by the impact of the infection on their dialysis services. This is therefore an important time to monitor the care being delivered to patients with kidney disease and use data to advocate for those at risk of adverse outcomes.

Recognising this, the ISN emailed respondents to its 2018 SharE-RR survey to find out which dialysis and transplant registries had established COVID-19 surveillance systems and whether they would be willing to share lessons from materials they had already developed. The aim was to facilitate a more coordinated collection of data on COVID infection in people with kidney disease worldwide. While there was lots of interest in collecting data, few registries were yet doing so – see below.

We are currently working on a data entry portal that would allow anonymised data to be collected on people with kidney disease and COVID-19 infection in countries without their own infrastructure. As soon as this is available we will post information here.

If you are aware of any other initiatives collecting data on COVID-19 positive people with kidney disease – chronic kidney disease, acute kidney injury or renal replacement therapy – please send details to triva@theisn.org and we will update the list below.

Thank you,

Dr Fergus Caskey
On behalf of the SharE-RR Steering Committee

Renal registries collecting data on COVID-19, by regional board:

Global Operations Center

Avenue des Arts 1-2
1210 Brussels, Belgium
Tel: +32 2 808 04 20
Fax: +32 2 808 4454
Email contact

               

Americas Operations Center

340 North Avenue 3rd Floor
Cranford, NJ 07016-2496, United States
Tel: +1 567 248 9703
Fax: +1 908 272 7101
Email contact