Tag - patient advocacy

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Eight editions of kidney stories on camera: bringing lived experience into global focus 

Since its launch in 2019, the ISN Community Film Event is seen as a distinctive creative platform where patients, families, healthcare professionals, and advocates can highlight the impact of living with kidney diseases by sharing their personal experiences.  Submit your film  Across eight editions, the films have taken viewers into remote communities, through transplant journeys, and into dialysis units, hospitals, and homes, depicting uncertainty and challenges alongside resilience and hope.  With submissions now open for...

August 31, 2026Events, ISN Community Film Event, News, WCNRead more...

Play your part in turning the WHO kidney health resolution into action 

Advocating for national kidney health action just got easier. The ISN has developed a one-page tool for advocating with government and health system stakeholders showing how they can support the national implementation of the WHO kidney health resolution.   Download and share the one-pager   Based on an ISN-led policy paper published in The Lancet in May 2026, the one-pager outlines five practical steps countries can take to move from commitment to implementation,...

June 22, 2026Advocacy, News, WHORead more...

World Kidney Day 2026: Caring for people, protecting the planet — get involved! 

How will you support kidney health and sustainability this World Kidney Day?  With kidney disease affecting millions worldwide and environmental factors such as heat, pollution, and access to clean water increasingly shaping risk, this year’s theme, “Kidney Health for All: Caring for People, Protecting the Planet,” calls for prevention, early detection, and care models that are people-centered and planet-conscious.  Read...

February 23, 2026Advocacy, News, World Kidney DayRead more...

HRH Prince Daniel of Sweden meets ISN Immediate Past-President, Masaomi Nangaku, in Japan to champion global kidney health 

On October 14, 2025, His Royal Highness Prince Daniel of Sweden visited ISN Immediate Past-President Masaomi Nangaku at the University of Tokyo Graduate School of Medicine. A kidney transplant recipient and patron of the ISN, Prince Daniel has long been an advocate for kidney disease awareness. They discussed ISN initiatives, including the Global Kidney Health...

October 27, 2025NewsRead more...

ISN Journal summaries on the SONG initiative and public data in research 

Kidney International®  The Standardized Outcomes in Nephrology (SONG) initiative: A decade of harmonizing patient voices and research in kidney disease   The authors of this editorial highlight how research on chronic kidney disease has been hindered by inconsistent and often patient-irrelevant reporting of outcomes.   This challenge prompted the launch of the global Standardized Outcomes in Nephrology (SONG) initiative...

June 30, 2025Journals, NewsRead more...

Help us expand the global map of kidney patient organizations: Share your recommendations 

The ISN is committed to amplifying the voices of people living with kidney disease through several initiatives, including the work of the ISN Patient Liaison Advisory Group. Another key effort is an ongoing global map of kidney patient organizations designed to help individuals find support and connect with others who share similar experiences.  Explore the...

April 28, 2025Advocacy, NewsRead more...

Demystifying Global Kidney Trials: Two New Case Studies in the ‘Guide for Everyone’

The “ISN Global Kidney Trials Insights: A Guide for Everyone” has expanded to include two new case studies. Based on the ISN-ACT Global Trials Focus (GTF) summaries, the guide translates complex trial findings into accessible information to help those living with kidney diseases and others better understand advancements in kidney care. Access the simplified summaries...

November 12, 2024News, ResearchRead more...

Raising the Profile of Kidney Disease: ISN Advocates for Global Awareness at UNGA – Sign and Share the Petition!

In September, the ISN had a powerful presence at UNGA79, successfully raising awareness of the human and economic burden of kidney disease while garnering support from Member States to promote kidney health within the broader noncommunicable disease (NCD) agenda. The ISN’s aims at the event were threefold: Raise awareness about the urgent need to prioritize kidney...

October 14, 2024Advocacy, NewsRead more...

What Does Kidney Health Mean to You? Defining Kidney Health Together to Improve Patient Resources – Take the ISN Survey!

Take the two-minute survey here Toward ensuring our resources remain relevant and practical for patients, the ISN has developed a survey to gather definitions of 'kidney health' from the international kidney community. In addition, the ISN invites participants to share patient resources they would like to add to the "Resources for People Living With Kidney Disease"...

July 1, 2024Initiatives, NewsRead more...

Sharing a Valuable Tool to Assess Kidney Disease Risks: Meet the ISN Healthy Kidneys Champions and Join Their Efforts!

ISN Healthy Kidneys Champions - members of ISN’s regional boards- are leading the dissemination of the "Are Your Kidneys Healthy?" one-minute online quiz. This quiz, available in 26 languages, helps people understand their risk for kidney disease and know when to talk to their healthcare professional. Find out more about how ISN Healthy Kidneys Champions are promoting...

July 1, 2024Initiatives, NewsRead more...

The ISN Supports Groundbreaking Advances in Addressing Transplantation Issues at the 77th World Health Assembly

The @ISBT128 presented at #WHA77 a constituency statement on the Transplantation of Human Cells, Tissues, and Organs, signed by the ISN and key stakeholders. Holistic kidney transplantation care is crucial for saving lives and improving outcomes.Download the statement here:… pic.twitter.com/W6vqtr57It— Int Society of Nephrology (@ISNkidneycare) May 29, 2024 The ISN attended the 77th...

June 19, 2024Advocacy, NewsRead more...

Prioritizing Kidney Care: The ISN and Devex to Hold Event on Lifesaving Kidney Therapies at the WHA77 on May 29

The ISN is collaborating with Devex for the second consecutive year to discuss expanding global kidney care. Register for the event online or in person here The event, “Advancing Kidney Care for All: Expanding Access to Lifesaving Therapies,” will take place on the occasion of the 77th session of the World Health Assembly in Geneva, Switzerland, on May 29,...

May 6, 2024Advocacy, News, WHORead more...

Customize Your World Kidney Day Experience and Raise Awareness of Kidney Disease – Create an Account to Explore Exciting Features of the New WKD Website!

World Kidney Day (WKD) has launched a brand new website! Watch this video to get to know the upgraded WKD website and its exciting new features: WKD Youtube Designed to enhance the online journey for thousands of WKD participants worldwide, this user-friendly platform was developed to facilitate the advancement of the WKD mission to raise global awareness...

January 22, 2024Advocacy, News, World Kidney DayRead more...

“To Protect the Kidneys, You Need to Protect the Heart”: Valerie Luyckx Represents the ISN at the European Society of Cardiology’s Congress

Valerie Luyckx, ISN Advocacy Working Group chair, was invited to join a panel of experts at the World Heart Federation's Heart Café Session "Navigating the Complex Relationship Between Chronic Kidney Disease and Cardiovascular Complications," held as part of the European Society of Cardiology (ESC) Congress in Amsterdam, the Netherlands. Watch a recording of the event...

September 4, 2023Advocacy, NewsRead more...

High-level Stakeholders Discuss Innovative Solutions for Green Kidney Care at the European Kidney Forum

The European Kidney Health Alliance (EKHA), of which the ISN is a full board member, held its annual European Kidney Forum in June alongside the MEP Group for Kidney Health. The meeting brought together high-level stakeholders to discuss concrete and forward-looking solutions to the environmental burden of kidney care. This year's forum, "The Future of...

July 17, 2023Advocacy, European Union, NewsRead more...

International Diabetes Federation (IDF) – ISN Joint Policy Brief on Living With Diabetes and Kidney Disease To Launch at Webinar on July 13

The ISN is pleased to announce that the joint IDF-ISN policy brief “Renewing the Fight: A Call to Action for Diabetes and Chronic Kidney Disease” will be launched at a webinar taking place on July 13, 2023, from 2-3.15 p.m. CEST. Register for the webinar here. Aimed at advocates, healthcare professionals, and policymakers involved with people...

July 3, 2023UncategorizedRead more...

ISN Patient Liaison Advisory Group Members Report on Recent Activities Highlighting the Importance of the Voices of People Living with Kidney Disease to Improve Kidney Care

Mr. Manvir Victor (center with hat and sunglasses) alongside participants at the third "Transplant Awareness Walk" that took place in May in Kuala Lumpur Mr. Manvir Victor, past chair and member of the ISN Patient Liaison Advisory Group, reports on transplant awareness walks in Malaysia: "The third consecutive monthly "Transplant Awareness Walk" took place the last...

June 19, 2023Advocacy, News, WHORead more...