Tag - patient advocacy

Customize Your World Kidney Day Experience and Raise Awareness of Kidney Disease – Create an Account to Explore Exciting Features of the New WKD Website!

World Kidney Day (WKD) has launched a brand new website! Watch this video to get to know the upgraded WKD website and its exciting new features: WKD Youtube Designed to enhance the online journey for thousands of WKD participants worldwide, this user-friendly platform was developed to facilitate the advancement of the WKD mission to raise global awareness...

“To Protect the Kidneys, You Need to Protect the Heart”: Valerie Luyckx Represents the ISN at the European Society of Cardiology’s Congress

Valerie Luyckx, ISN Advocacy Working Group chair, was invited to join a panel of experts at the World Heart Federation's Heart Café Session "Navigating the Complex Relationship Between Chronic Kidney Disease and Cardiovascular Complications," held as part of the European Society of Cardiology (ESC) Congress in Amsterdam, the Netherlands. Watch a recording of the event...

High-level Stakeholders Discuss Innovative Solutions for Green Kidney Care at the European Kidney Forum

The European Kidney Health Alliance (EKHA), of which the ISN is a full board member, held its annual European Kidney Forum in June alongside the MEP Group for Kidney Health. The meeting brought together high-level stakeholders to discuss concrete and forward-looking solutions to the environmental burden of kidney care. This year's forum, "The Future of...

International Diabetes Federation (IDF) – ISN Joint Policy Brief on Living With Diabetes and Kidney Disease To Launch at Webinar on July 13

The ISN is pleased to announce that the joint IDF-ISN policy brief “Renewing the Fight: A Call to Action for Diabetes and Chronic Kidney Disease” will be launched at a webinar taking place on July 13, 2023, from 2-3.15 p.m. CEST. Register for the webinar here. Aimed at advocates, healthcare professionals, and policymakers involved with people...

ISN Patient Liaison Advisory Group Members Report on Recent Activities Highlighting the Importance of the Voices of People Living with Kidney Disease to Improve Kidney Care

Mr. Manvir Victor (center with hat and sunglasses) alongside participants at the third "Transplant Awareness Walk" that took place in May in Kuala Lumpur Mr. Manvir Victor, past chair and member of the ISN Patient Liaison Advisory Group, reports on transplant awareness walks in Malaysia: "The third consecutive monthly "Transplant Awareness Walk" took place the last...

The ISN Joined European Event to Celebrate 80th Anniversary of Dialysis

As a European Kidney Health Alliance (EKHA) member, the ISN was pleased to participate in the film screening and roundtable, "Celebrating 80 Years for Dialysis: Time Again for Science-Fiction to Meet Reality," organized by the EKHA at the European Parliament in Brussels on April 26, 2023. Hosted by MEPs Ondřej Knotek and Martin Buschmann, co-chair of the MEP...

Four Statements and a Stand-alone Event – the ISN Advocates for Better Kidney Health for All at the 76th World Health Assembly

Four Statements and a Stand-alone Event - the ISN Advocates for Better Kidney Health at the 76th World Health Assembly The ISN is pleased to announce its participation at the 76th World Health Assembly (WHA) in Geneva from May 21 to 30, 2023. Working alongside partners in the NCD Alliance and the World Heart Federation,...

Download World Kidney Day Logo, Visuals, and Call-to-Action; Multiple Languages Available!

The 2023 World Kidney Day (WKD) theme "Kidney Health for All – Preparing for the Unexpected, Supporting the Vulnerable!" and call-to-action are available in Chinese (simple and traditional), French, German, Hindi (coming soon), Italian, Persian, Portuguese, Russian, Spanish, and Swahili! The WKD logo and WKD 2023 campaign visuals are also available in different languages. Use this...

The ISN-Italian Society of Nephrology Joint Session on IgA Nephropathy Now Available to Watch on the ISN Academy

Watch the video here. The 63rd Annual Congress of the Italian Society of Nephrology (SIN) was held in October 2022 in Rimini, Italy. The ISN presented a joint session with SIN, "Treatment of IgA Nephropathy: Shall we select the Drug or the Patient?" presented by Rossana Coppo, chair of the ISN Western European Regional Board. 

Make a Short Film to Raise Awareness of the Impact of Kidney Diseases for the ISN Community Film Event

The ISN Community Film Event provides a powerful platform to showcase compelling stories about those affected by kidney diseases. Your short film will help raise awareness of preventative health measures and the need for equitable access to kidney care services, helping to improve patient outcomes worldwide. Selected films reach a global audience at the World Congress of Nephrology. Find out...

The ISN Makes Recommendations in the Review of Updated Appendix 3 to the WHO Global NCD Action Plan

The ISN has officially submitted its list of comments on the recently published 2nd draft of the updated Appendix 3 to the “Global Action Plan for the prevention and control of noncommunicable diseases (NCDs) 2013–2030” to the World Health Organization (WHO). Designed to support the implementation of the action plan's six objectives, Appendix 3 outlines...

The ISN Joins the Discussion on Improving Quality of Life During Dialysis at European Roundtable

The ISN was pleased to participate in the hybrid roundtable, ‘Quality of Life in Dialysis Care,’ hosted in Madrid by our partner, the European Kidney Health Alliance (EKHA), on , 2022. The event was organized as a follow-up to the European Kidney Patients’ Federation's White Paper on Living Better with CKD (2021) to discuss and...

World Kidney Day 2023 Official Campaign ‘Kidney Health for All’ Launches – Show Your Support: Download and Share the Banners

World Kidney Day (WKD) 2023 will take place on Thursday, March 9. This year's theme is 'Kidney Health for All - Preparing for the unexpected, supporting the vulnerable!' To ensure preparedness and show support, the ISN encourages all to join in raising awareness of the impact disastrous events have on people living with kidney disease. Download and share the WKD...

The ISN Continues to Lobby to Raise Kidney Disease to the Top of the Agenda During Global Week for Action on NCDs

Today marks the start of the Global Week for Action on Non-communicable Diseases (NCDs), with activities taking place worldwide to raise awareness of the urgent need for increased financing to prevent and treat NCDs and build resilient health systems. With an estimated 41 million deaths yearly, NCDs constitute the leading cause of death and disability...

Patient Advocate Climbs Malaysia’s Highest Mountain to Promote Organ Donation

Mr. Manvir Victor and other kidney transplant recipients at the summit of Mount Kinabalu in Malaysis   Please join us in congratulating Mr. Manvir Victor, immediate past chair of the ISN Patient Liaison Advisory Group, who has recently succeeded in climbing Malaysia’s tallest peak to raise awareness of the importance of organ donation in the country. Mr....