ISN President Places Patients at Center of ISN’s Mission at Global Summitjbrown
On May 13, the ISN President, Agnes Fogo, spoke at the Third Annual Global Summit on Kidney Innovation: Expanding Patient Choices and Outcomes, organized by the American Association of Kidney Patients and the George Washington University, hosted virtually from May 13-14, 2021.
Watch Professor Fogo’s presentation here.
As a leader in the global kidney space, Agnes Fogo stressed the vital role that kidney patients play in research and innovation in the session, “International Kidney Innovations Consortium: International Organizations Working in the Space Provide Global Perspectives.” In addition, she outlined how the ISN would help drive change by empowering local communities and supporting fledgling patient groups in lower and middle-income countries.
As a non-state actor in official relations with the World Health Organization, the ISN firmly supports their 1978 Alma Ata Declaration’s assertions that “people have the right and duty to participate individually and collectively in the planning and implementation of their health care.”
The ISN considers patient participation in healthcare-related decision-making critical to shaping effective healthcare systems that can address their needs adequately and campaigns for more substantial patient involvement in clinical trials to ensure that the evidence generated aligns with patient priorities.