Advocacy

ISN President Presents at Patient Support Group Conference

Kidney Warriors Foundation, India's largest kidney patient support group, held the virtual conference, “Patient Advocacy in kidney transplantation, renal diet and dialysis, for bringing uniform treatments and renal practices across major cities in India,” on December 20, 2020. Patient-centeredness is a central tenet of health care delivery: only patients can fully understand the challenges of...

ISN-DOPPS Launch Survey to Assess Impact of COVID-19 on Kidney Units

The ISN and the Dialysis Outcomes and Practice Patterns Study (DOPPS) Program at Arbor Research Collaborative for Health in Michigan, United States, are conducting a survey on the impact of the COVID-19 pandemic on the care of patients undergoing chronic dialysis for the treatment of kidney failure. People with kidney diseases are particularly vulnerable to...

CORONATION: Upload Bulk Data to Register Patients Affected by COVID-19 on the Global COVID Registry

CORONATION, developed by the ISN in collaboration with the University of Cambridge, is the Coronavirus global observational registry, a data entry portal accessible to nephrologists worldwide to collect anonymous data on individual people with kidney disease and the COVID-19 infection. The initiative was set up in response to the growing need to gather data to...

World Kidney Day (WKD) 2021: Social Media Toolkit and Resource Library Available Now

The World Kidney Day (WKD) 2021 social media toolkit is now available on the WKD website. The toolkit contains information and resources to develop your social media campaign to raise awareness of kidney health and spread WKD’s message: Living well with kidney disease. The toolkit proposes ideas to help you create your own social media campaign, including visuals...

European Commission’s Pharmaceutical Strategy to Tackle Unmet Kidney Care Needs

The ISN welcomes the European Commission’s “Pharmaceutical Strategy for Europe,” released on November 25, 2020. Aspects of the strategy’s objectives are reflective of ISN’s vision of equitable access to kidney health and include: Re-thinking policies to stimulate innovation in areas of need, and patient-centered, health system-oriented pharmaceutical innovation to address long-term care settings. Investing in research and...

ISN President Encourages Patient-Centric NCD Policies

ISN President, Vivekanand Jha, spoke at the online event “Leaving No-one Behind: The Need for a Person-Centred, Inclusive NCD Agenda Confirmation” organized by the NCD Alliance on November 5, 2020. This roundtable event focused on the challenges of the current NCD response and key opportunities and solutions to go beyond a siloed NCD agenda, notably...

ISN Urges Continued Efforts to Prioritize NCDs at World Health Assembly

The ISN participated in the resumed 73rd World Health Assembly (WHA) organized by the WHO, which took place virtually from November 9-14, 2020. The ISN submitted three statements focusing on: The prevention and control of kidney disease and other NCDs. Maternal, infant, and young child nutrition. WHO’s work in health emergencies. Recordings of the sessions, including the statements presented...

Statement by the International Society of Nephrology on delivering essential services to affected populations during health emergencies, at the 73rd edition of World Health Assembly

The International Society of Nephrology (ISN) congratulates the WHO on its work delivering essential services to affected populations during health emergencies. People living with kidney disease are extremely vulnerable during health crises, being at higher risk of contracting more severe illnesses. Indeed, those requiring dialysis tend to have weaker immune systems, which makes it harder...

Statement by the International Society of Nephrology on behalf of the Global Coalition for Circulatory Health at the 73rd edition of World Health Assembly

Given the disproportionate impact of the COVID-19 pandemic on people living with NCDs and circulatory conditions such as kidney disease, diabetes, CVD, and stroke, the International Society of Nephrology, International Diabetes Federation, World Heart Federation, and World Stroke Organization reiterate our support for Political Declaration (A73/5) on the prevention and control of non-communicable diseases. As...

Statement by the International Society of Nephrology on maternal, fetal and child nutrition at the 73rd edition of World Health Assembly

Given the strong association between poor maternal, fetal and child nutrition, and an increased risk of kidney disease in adult life, the International Society of Nephrology welcomes the adoption of the World Health Organization Decision EB146(20) on maternal, infant and young child nutrition. Poor maternal health and nutrition before and during pregnancies can have adverse...

ISN Liaises with EU and ACP to Promote Universal Health Coverage

The ISN is currently liaising with the European Union (EU) and African, Caribbean, and Pacific (ACP) Group of States representatives to ensure that a forthcoming partnership agreement between these blocs promotes UHC in all ACP countries, particularly regarding optimal health care for patients living with kidney diseases. The Cotonou Agreement, signed in 2000 by the...

SharE-RR Workshop Program Converted to Successful Webinar Series

Due to the COVID-19 pandemic, the SharE-RR (SHARing Expertise to support the set-up of Renal Registries) workshop, scheduled to take place at the World Congress of Nephrology 2020, was unable to go ahead as planned. The program, developed by the SharE-RR advisory group to share knowledge and experience in establishing renal registries, was re-worked from a...

World Kidney Day: Tools to Start a Local Campaign

The 2021 World Kidney Day Campaign (WKD) content is now available in Arabic, Chinese (simple and traditional), French, Greek, Italian, Russian, Spanish, and Thai. These newly translated pages include details of the 2021 WKD theme and call for action to facilitate local awareness-raising activities. A series of WKD 2021 campaign images presenting the 2021 focus on living...

ISN Joins Stakeholder Consultation on the Development of the WHO Global Diabetes Compact

Professor Ifeoma Ulasi, University of Nigeria, ISN Advocacy Working Group member, and Paul Laffin, ISN Advocacy Director, participated in the WHO Stakeholder Consultation on the Development of the WHO Global Diabetes Compact on October 14, 2020. The WHO Global Diabetes Compact, to be launched in April 2021, builds on the Global Hearts Initiative to focus...

ISN to Contribute to WHO Regional Committee Meetings

The ISN continues to strengthen its collaboration with the World Health Organization during the COVID-19 pandemic. In 2020, besides attending the World Health Assembly, the ISN will participate in the 72nd Session of the Regional Committee of WHO for the Americas and the 71st session of the World Health Organization Regional Committee for the Western...

Help Empower Kidney Patients: CELEBRATE World Kidney Day 2021

World Kidney Day (WKD) 2021 takes place on Thursday, March 11. The 2021 campaign will focus on, “Kidney Health for Everyone, Everywhere - Living Well with Kidney Disease.” Initiatives will concentrate on raising awareness of effective symptom-management to improve patients’ quality of life and encouraging patient self-empowerment to ensure that people with kidney diseases can...

The ISN Presents Evidence to the UK Committee on the Science of COVID-19

Professor Donal O’Donoghue, Chair of the ISN’s Advocacy Working Group, was among a distinguished panel of experts who gave evidence at the House of Lords Science and Technology Select Committee hearing on the Science of COVID-19 in the UK. Presenting at the beginning of the virtual session on Tuesday, September 15, Professor O’Donoghue outlined the...

ISN Teams up with DOPPS to Survey the Impact of COVID-19 on Dialysis Patients

The COVID-19 pandemic is likely to disproportionately impact people living with kidney disease. It is, therefore, more important than ever to monitor the care being delivered to patients with kidney diseases and to use data to advocate for those at risk of adverse outcomes. Recognizing this, the ISN has launched several data collection initiatives over the past few...

ASN/ERA-EDTA/ISN Joint Working Group’s Call to Action with Paper on Ethical Issues in Nephrology

Ethical challenges in nephrology: a call for action by the ASN/ERA-EDTA/ISN Joint Working Group on Ethical Issues in Nephrology, has been published in Nature Reviews Nephrology. The paper identifies ten broad areas of ethical concern as priority challenges that require collaborative action to highlight the need for ethical analysis of issues within kidney care and to...