Build better kidney health data – one step at a time with SharE‑RR Toolkit
Reliable kidney health data is critical to improving care, but where do you begin?
The ISN SharE-RR Toolkit is your free step-by-step guide to building or strengthening a kidney health registry. Whether your focus is on chronic kidney disease, acute kidney injury, dialysis, or transplantation, this practical resource walks you through everything from feasibility to long-term maintenance.
“SharE-RR has transformed my approach to building renal registries by offering practical, scalable strategies tailored to resource-limited settings. Most importantly, it created opportunities to collaborate with global leaders, fostering a network of shared knowledge and innovation.” Rajitha A. Abeysekera, Sri Lanka, contributor to the SharE-RR Toolkit.
Six steps to success: A clear, structured pathway to setting up or improving your renal registry, as outlined in the toolkit
Getting started
The registry preparation checklist helps you plan your approach and set priorities before launching your project.
Follow the structure
The toolkit breaks down the registry-building process into six clear phases: feasibility, team, detail, delivery, and maintain (see visual above).
From theory to action
The toolkit supports a key policy goal of the ISN Manifesto: establishing and maintaining national kidney registries to inform evidence-based policymaking.
From data to impact
Use up-to-date data on global kidney registries from the ISN-GKHA Interactive Map to guide efforts to improve care standards and drive policy and resource allocation.
Who should use the toolkit
Clinicians, researchers, and public health officials, especially in low-resource settings, can benefit from the toolkit’s ready-to-use expert guidance.
We want to hear from you!
Have a question? Want to share your registry story? Email us at research@theisn.org.
