Launched at a high-level policy forum during the 78th World Health Assembly, a new fact sheet from the ISN spotlights the often-overlooked burden of rare kidney diseases (RKDs) and calls for urgent, coordinated action to improve outcomes for those affected and their families. The fact sheet raises awareness and calls for global commitment to...
Understanding and managing rare kidney diseases can be challenging, even for experienced nephrologists. The ISN Rare Kidney Diseases Toolkit offers concise, expert-led guidance to support timely recognition and informed decision-making in complex cases. Explore the ISN Rare Kidney Diseases Toolkit Focused, accessible, and clinically relevant The toolkit features practical resources on a range of rare conditions, with...
The ISN Academy presents a comprehensive new course on monoclonal gammopathy of renal significance (MGRS) and amyloidosis, designed to equip healthcare professionals with critical knowledge on these rare but impactful conditions. Access the course here It features case-based, 20-minute recorded talks on key topics, including: The pathogenesis, diagnosis, and classification of MGRS subtypes—such as MIDD, PGNMID, C3G,...
Kidney International® Outcomes From the International Society of Nephrology Hemolytic Uraemic Syndromes International Forum The 2023 ISN aHUS Forum brought together global experts to discuss key challenges in managing complement-mediated hemolytic uraemic syndromes (HUS), including nomenclature, biomarkers, and treatment protocols. Key areas for future research were identified, such as genetic predisposition, optimal complement inhibitor use, and improving...
The ISN has added two new webinars to its Rare Kidney Disease Toolkit, focusing on immunoglobulin A nephropathy (IgAN) and C3 glomerulopathy (C3G). These expert-led sessions offer valuable insights into diagnosing, managing, and treating these rare but challenging kidney diseases. Watch "Advancements in C3 Glomerulopathy (C3G)," featuring David Kavanagh (UK), Alison Ma (Hong Kong), and...
Rare kidney diseases (RKD) place a substantial economic burden on patients and health systems, the extent of which is unknown and may be systematically underestimated by health economic techniques. The “Scoping Review of Economic Analyses of Rare Kidney Diseases,” written in collaboration with The George Institute for Global Health, examines the existing evidence base toward...
As the new academic year begins, the ISN Academy is excited to welcome lifelong learners to enhance their expertise and advance their careers in kidney care with the ISN's comprehensive curriculums and courses for all levels. Access all ISN Academy courses and curriculums Here's a glimpse of what's on offer: POCUS Curriculum Course overview: Training program that...
The Rare Kidney Diseases Toolkit* curates resources to raise the profile and understanding of rare kidney diseases. It offers disease-specific tools and highlights the burden, gaps, and unmet needs that need to be addressed. Access the toolkit here Tools include infographics, webinars, and the EACCME-accredited ISN Complement Pathway Disease Curriculum, which reviews the pathophysiology, diagnosis and...
