An ISN group is working on a rare kidney disease project. Because neglected kidney diseases often face similar issues to rare kidney diseases and there is some overlap in these areas, the group is planning to publish a companion piece on neglected kidney diseases, including an abstract and paper.
Your input will contribute meaningful data to this initiative. We thank you in advance for your time and participation.
Examine the Recently-Published Scoping Review on Early CKD Identification
Early CKD identification remains a much-debated subject in kidney care.
Over the past year, a group of ISN members has collaborated on a project to provide an understanding of the challenges of implementing early CKD identification and intervention programs.
One initial element of the collaboration, a scoping review, has been published in Kidney International Reports:
Read “Early Identification of CKD - a Scoping Review of the Global Populations” here.
The review summarizes available evidence on early CKD identification efforts globally. The authors note wide variations in the reported prevalence of CKD due to divergent measuring methods. They suggest standardizing early detection methods within high-risk populations and ensuring appropriate interventions to help improve the quality of programs and patient outcomes.
Through the project's scoping review and other components, the group hopes to provide stakeholders with a broad framework of the key elements required to develop CKD early detection and intervention programs that can be applied to different contexts.
Seeking Your Nominations: ISN 2023 Awards!
We all have friends and colleagues whose work deserves international recognition? Are you an ISN member? You can help recognize such work globally by submitting a nomination for an ISN Award!
Join Vivekanand Jha, Sunita Bavanandan and Peter J. Blankestijn to explore this timely topic, which is highly relevant to the future of kidney health given the impact of environmental changes on patients with kidney diseases.
Take a Closer Look at Day One of the Scientific Program for the Frontiers Meeting, and Register for the Event
The ISN Frontiers Meeting ‘Complement-related Kidney Diseases: Classification, Genetics, and Treatment’ will take place in Bergamo, Italy, from June 23-25, 2022.
Register for the ISN Frontiers Meeting in Bergamo here.
Meeting Chair, Marina Noris, describes what to expect from the first day of C3G/IC-MPGN sessions:
Researchers will present the latest findings on:
the role of C3 and C5
complement-activation products in C3G/ICMPGN
complex genetic determinants of these diseases, including genomic rearrangements and rare gene variants
Lectures will cover both animal and patient models, introducing new advances in the function and characterization of immunologic pathogenetic factors.
Participants will discover new developments in classification and gain insight into several unanswered clinical questions on these complex conditions, notably, the open issue of differential diagnosis.
Local WKD Survey Results Used to Gauge CKD Prevalence in Samoa
The National Kidney Foundation Samoa (NKFS) plays an important role in increasing awareness of chronic kidney disease in Samoa. As part of World Kidney Day 2019, the NKFS ran a successful month-long community screening campaign for chronic kidney disease (CKD).
The survey results were analyzed by Dr. Malama Tafuna'i’, a doctor at the ISN SRC Emerging Center in Samoa, and recently published in BMJ Open.
This study was part of a larger project assessing CKD prevalence in Samoans living in Samoa and Auckland, New Zealand. Dr. Tafuna'i’s paper on the prevalence of CKD in Samoans living in Auckland was recently promoted by the WHO’s external relations officer and by its Noncommunicable Diseases Management-Screening, Diagnosis and Treatment Unit head, Dr. Slim Slama, who stated at the ISN’s 2022 Oceania-focused Global Kidney Policy Forum, ‘kidney disease is…one of the greatest sources of catastrophic expenditure and impoverishment in the population living with chronic conditions.’
Are You Involved in CKDu Research? Explore Ongoing Studies and Share Your Data on the ISN Observatory of CKDu
The ISN Observatory of CKDu is a catalog where researchers can submit their findings or view other studies. This system facilitates global collaboration and data exchange, enabling researchers to know what studies are ongoing at any given time.
It aims to help raise awareness of the urgent issue of chronic kidney disease of unknown etiology/uncertain cause (CKDu) - a type of kidney disease that mainly affects marginalized agricultural communities.
A Challenge to the Kidney Care Community by a Man-made Crisis
Editors at Kidney International outline the impact of the war in Ukraine on kidney care in the country, calling for a concerted effort from global health communities to deploy emergency medical teams, medical aid, and supplies to assist kidney patients being displaced from Ukraine.
The authors describe the already precarious pre-war coronavirus situation in Ukraine and current conditions that will inevitably increase the impact of all infections, including COVID-19.
They also request information from researchers, health care providers and readers to better understand the health needs of populations in crisis from human conflict and natural causes.
Kidney Repair and Regeneration: Perspectives of the NIDDK (Re) Building a Kidney Consortium
The (Re) Building a Kidney (RBK) consortium is a National Institute of Diabetes and Digestive and Kidney Diseases focused on endogenous kidney repair mechanisms and the generation of new kidney tissue.
The authors provide an update on RBK studies of endogenous nephron repair, addressing productive nephron repair, cellular sources and drivers of repair, and the development of treatment through RBK studies.
In addition, readers are guided through RBK’s open access data hub for accessing, downloading and further analyzing data sets.
Diabetes Prevalence, Treatment, Control, and Outcomes Among Hemodialysis Patients in the Gulf Cooperation Council Countries
Dr. Saeed M.G. Al-Ghamdi from King Abdulaziz University, Jeddah, Saudi Arabia, and colleagues analyzed data from the Dialysis Outcomes and Practice Patterns Study to determine the relationship between HbA1c levels and mortality in hemodialysis patients from within the Gulf Cooperation Council countries.
Patients with diabetes and hemodialysis in these countries were found to have high comorbidity burden and mortality rates despite a relatively young mean age. The authors propose holistic strategies to improve diabetes care and outcomes at the primary, secondary and tertiary levels.